25 KB298 KB22 KB192920262004Zupan, Antonletnik:73str. II-47-II-50številka:supl. 2ISSN:1318-0347COBISSID:516969URN:URN:NBN:SI:doc-U0BFQH14enSlovensko zdravniško društvoZdravniški vestnikprogramirehabilitacijavocational rehabilitationživčnomišične bolezniRehabilitation programs for people with neuromuscular disorders| Program rehabilitacije za bolnike z živčno-mišičnimi boleznimi|Neuromuscular diseases are inherited, chronic, degenerative and progressive. The main characteristics of neuromuscular diseases are: muscular weakness, contractures, scoliosis, respiratory insufficiency, cardiac affection, nutrition disturbances, dependence on the help of others, possible social isolation and psychological problems. Appropriate rehabilitation programs should influence all mentioned characteristics. A special unit for rehabilitation of patients with neuromuscular diseases within the Institute for Rehabilitation of the Republic of Slovenia was established in 1993 at the initiative of the Muscular Dystrophy Association of Slovenia. The main aim of this establishment was to try to guide the patient and his family through the course of the disease. The article discribes the work of the mentioned unit. Different clinical rehabilitation programs for people with neuromuscular diseases are presented and some research results of the unit are mentionedŽivčno-mišične bolezni so dedne, kronične, degenerativne in progresivne. Glavne značilnosti živčno-mišičnih bolezni so mišična oslabelost, kontrakture, skolioza, dihalna insuficienca, prizadetost srca, motnje prehranjevanja, odvisnost od tuje pomoči, možna socialna izolacija in psihološke težave. Z ustrezno rehabilitacijo je potrebno vplivati na vse omenjene značilnosti. Posebna služba za rehabilitacijo bolnikov z živčno-mišičnimi boleznimi je bila ustanovljena na Inštitutu Republike Slovenije za rehabilitacijo v letu 1993 na pobudo Društva mišično obolelih Slovenije. Glavni namen ustanovitve je bil, da bi bolnike in njihove družine "vodili" skozi bolezen. Članek opisuje delo omenjene službe. Opisani so različni klinično rehabilitacijski programi za bolnike z živčno-mišičnimi boleznimi ter nekateri raziskovalni rezultatiTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaSlovensko zdravniško društvo